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Updates from FDA Center Directors

Post by sroberts in on June 21, 2021

Plenary – Messages for the NORD Summit Audience from Senior NIH and CDC Leaders

Post by sroberts in on June 10, 2021

Breakout Sessions

Post by sroberts in on June 10, 2021

Plenary – FDA Patient Engagement

Post by sroberts in on June 10, 2021

Lunch Break

Post by sroberts in on June 10, 2021

Breakout Sessions

Post by sroberts in on June 10, 2021

Networking Break

Post by sroberts in on June 10, 2021

Plenary – Gene Therapy and Gene Editing: Current Status and Potential Impact on the Rare Disease Community

Post by sroberts in on June 10, 2021

Plenary – We Stand Together

Post by sroberts in on June 10, 2021

Breakout Sessions

Post by sroberts in on June 10, 2021

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#nordsummit

rarediseases NORD @rarediseases ·
21 Nov

One of the most popular sessions at the 2022 #NORDSummit was, “Mental Health & #RareCancers.” This session allowed attendees the opportunity to gain insights on supporting patients & families struggling with mental health issues. Read more: https://bit.ly/3tGXzXn

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researchmatch ResearchMatch @researchmatch ·
4 Nov

Read the @RareDiseases Summit 2022 Recap! http://ow.ly/5Wzs50Lj6CJ #NORDSummit

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About NORD

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.


Alone we are rare. Together we are strong.®

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