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Updates from FDA Center Directors

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Breakout Sessions

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Plenary – Messages for the NORD Summit Audience from Senior NIH and CDC Leaders

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Lunch Break

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Plenary – FDA Patient Engagement

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Networking Break

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Plenary – Gene Therapy and Gene Editing: Current Status and Potential Impact on the Rare Disease Community

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Plenary – We Stand Together

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Breakout Sessions

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Plenary – Together We Are Strong: Best Practices and Case Studies for Successful Partnerships

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juliamahler_ Julia Mahler @juliamahler_ ·
26 May

Do I know anyone who has been to the #NORDSummit?

#TwitteRx #pharmed

NORD @RareDiseases

#NORDSummit poster abstract submissions are now open! Learn more information here and make sure to submit by August 1, 2022: https://bit.ly/3LiYAw8

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knowpheopara Know Pheo Para @knowpheopara ·
18 May

Have some great #pheo and #para research? Submit your abstract for #NORDSummit!

NORD @RareDiseases

#NORDSummit poster abstract submissions are now open! Learn more information here and make sure to submit by August 1, 2022: https://bit.ly/3LiYAw8

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About NORD

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.


Alone we are rare. Together we are strong.®

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