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Plenary – Rare Diseases as a Public Health Challenge

Post by sroberts in on June 10, 2021

Networking Break

Post by sroberts in on June 10, 2021

FDA Commissioner Keynote

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Discussion Groups

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Plenary – Designing Trials for Inclusivity, Equity and Engagement

Post by sroberts in on June 10, 2021

Lunch Break

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Plenary – NIH Town Hall

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Plenary – Drug Pricing: State and Federal Perspectives

Post by sroberts in on June 10, 2021

Breakout Sessions

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Breakout Sessions

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#nordsummit

checkrare CheckRare @checkrare ·
11 Aug

Don’t miss out on the most anticipated annual conference for the #RareDisease community, the #NORDSummit on Oct 17-18. The event provides two days of insights from #patient #advocates and leading experts in rare topics. Register today: https://nordsummit.org/?media_partner=check_rare

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checkrare CheckRare @checkrare ·
2 Aug

The #NORDSummit (Oct 17-18) hosted by @RareDiseases is a can’t miss event for the #RareDisease community. From #AcceleratedApproval to #data sharing, this event covers critical topics and is an opportunity to learn from both experts and each other. https://nordsummit.org/?media_partner=check_rare

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About NORD

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.


Alone we are rare. Together we are strong.®

  • Agenda
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  • Register
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