Onsite Health & Safety

As of July 7, 2022

Download Health & Safety PDF

All guidelines posted here are subject to change at any time prior to the start of the Rare Diseases and Orphan Products Breakthrough Summit® and are made for the best interest of those living with rare diseases, some of whom may be immunocompromised.

We are excited to welcome you to Washington, DC for the NORD Summit, live on Monday, October 17 and Tuesday, October 18, 2022.

Health & Safety Overview

Attendees should be aware that while every effort to reduce the risk of COVID-19 transmission will be made, it is possible that attendees of the NORD Summit will come in contact with people in airports, on public transportation, and in other public areas with individuals who could potentially carry the virus.

At this time, ALL attendees of the NORD Summit must be fully vaccinated against COVID-19 prior to arrival in Washington, DC or have received a negative PCR or antigen (rapid) COVID-19 test within 24 hours of picking up their registration badge at the conference venue. If you cannot or choose not to comply with NORD’s health and safety protocols, we hope to provide you with other ways to enjoy the program at a later date.

Proof of vaccination or a negative COVID-19 test may be submitted via email with a link to a secure, HIPAA-compliant verification site ahead of the conference. More information on that will follow your registration for the event. NORD staff will have no access to the information submitted via the verification site; NORD will only receive notification that the attendee has or has not completed the verification process.


It is mandatory for ALL persons within the meeting and event spaces to wear a face mask covering BOTH their nose and mouth at all times while they are indoors. This includes attendees and all accompanying persons above the age of two (2).

By attending the NORD Summit in person, you are confirming that you:

  • Are fully vaccinated or have received a negative PCR or antigen COVID-19 test within 24 hours of picking up your registration badge at the conference venue;
  • Are not experiencing any symptoms of COVID-19 identified by the Centers for Disease Control and Prevention (CDC) at gov;
  • Are not under any self-quarantine orders; and
  • Acknowledge and will abide by all applicable regulations and health and safety

If you will not be fully vaccinated by the time of the NORD Summit and are registered for the live in-person meeting, you may cancel your registration and watch the recorded content when it becomes available.

Official National & State Guidelines

Booster shots are strongly recommended by the CDC if it has been more than five (5) months after completing the primary COVID-19 vaccination series.

NORD is committed to maintaining the health and safety of all NORD Summit attendees, and the latest Centers for Disease Control and Prevention and World Health Organization(WHO) guidelines as well as industry best practices will be followed as closely as possible. NORD will be coordinating with the Marriott Marquis to actively monitor local conditions, risk factors, and any applicable laws, regulations, and guidance.

As these factors are frequently changing, this page will continue to be updated as new guidance is released.

Additional NORD Guidelines


  • Please plan to register well in advance, to allow for the HIPAA-compliant COVID screening and approval process to be completed prior to your arrival.
  • Attendees who are registered for the in-person meeting should have received a link to the HIPAA-compliant site to submit their COVID vaccine documentation.
  • In-person attendees who plan to submit a negative test will receive a link to upload their result on Friday, October 14th. Negative test results must be dated and timed within 24 hours of arrival at the event.


  • NORD is unable to provide resources for on-site COVID-19 testing on arrival, or prior to departure for attendees. Please complete your COVID-19 screening test prior to arrival at the NORD Summit.
  • NORD is not able to provide COVID-19 testing; you are required to make your own arrangements.
  • For information on testing locations, contact your state or local government, or your health care provider to determine the options available for testing in your area.

Venue and Hotel

  • The Marriott Marquis will be monitoring and following the CDC, WHO, and local health department’s guidelines. Please visit the Marriott Marquis website for detailed information about the steps that Marriott is taking to protect meeting attendees.
  • Please note that social distancing guidelines may continue to evolve based on direction from the CDC and the District of Columbia. The Marriott Marquis and NORD are committed to full compliance and safe social distancing in all meeting areas.


  • At this time, the wearing of protective masks is required of all attendees, faculty, and staff, regardless of whether it is required by law at the time of the meeting.
  • Masks must be worn properly (covering both mouth and nose) at all times indoors, except as noted below.
  • The indoor mask requirement applies to all indoor areas of the Marriott Marquis. Masks are not required outdoors.
  • While surgical masks and additional cloth masks will be provided on site, attendees are welcome to bring their own mask of choice. Surgical, N95, and KN95 masks are strongly preferred. Gaiters, bandanas, and masks with exhalation valves will not be accepted.
  • Attendees who are not properly masked will be refused admittance to sessions and events and may have their badges revoked. Please see CDC guidance on masking.
  • Masks may be removed briefly in the following situations:
    • When actively eating or *
    • When speaking at the lectern (as the distance between the speaker and audience will be greater than six feet). Speakers should put their masks back on when not actively
    • When being photographed or interviewed on camera by registered media or *

*PLEASE NOTE: Attendees should maintain a distance of at least six (6) feet from others when unmasked in the above-mentioned situations if possible. Food and beverages will only be permitted in designated areas.

Hand Sanitizer

  • Hand sanitizing stations will be available in multiple locations throughout the Marriott Marquis for all attendees to use.

Health and Safety in the District of Columbia

Individual Accountability

  • By choosing to attend any in-person component of an event, you agree to comply with all safety protocols that NORD or the venues may have in place. This is to ensure everyone is cared for and met in a way in that respects their health needs to the extent possible.
  • To preserve a safe environment, should any participant fail to comply with such protocols, NORD may take immediate steps including, but not limited to, denial of entrance to the event or removal of the non-compliant participant from the event space. Unless otherwise determined by NORD in its sole discretion, any participant who is denied access/entrance to or removed from an event based on this policy will not be eligible for a refund of any registration fees paid for access/entrance to or participation in the event.