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Check back often for updates!
February 12, 2024 – Speaker and Abstract Submissions Open
March 8, 2024 – Speaker Submission Deadline
June 12, 2024 – Abstract Submission Deadline
June 24, 2024 – Registration Opens
July 23, 2024 – Abstract Decision Notifications sent by NORD
September 9, 2024 – Early Bird Registration Closes
September 20, 2024 – Hotel Reservations Deadline
October 20, 2024 – NORD Rare Diseases & Orphan Products Breakthrough Summit Welcome Reception
October 21 -22, 2024 – NORD Rare Diseases & Orphan Products Breakthrough Summit
On the first day of the NORD Summit, we announced the launch of a new education series in partnership with the FDA and C-Path titled, “Rare Disease Drug Development: What Patients and Advocates Need to Know,” designed to help patients and advocacy groups understand their essential role in the drug development process so we can produce more and better treatments for rare diseases.
Each course in the series is available in both English and Spanish in a mix of formats to accommodate multiple learning styles, including animated videos, expert interviews, infographics, fact sheets, checklists, and interactive quizzes. The first few courses are available now, and subsequent courses will be released later this year and throughout 2024.
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Living Rare, Living Stronger®
NORD Patient and Family Forum
WHERE: Hilton Los Angeles, Universal City in Los Angeles, California
WHEN: June 7-8, 2024
WHY:
The Rare Impact Awards®
WHERE: Universal Studios, California
WHEN: June 8, 2024
WHY: Gather to celebrate and honor the individuals and organizations driving progress and pioneering advancements in rare disease
Corporate sponsorship opportunities are available for Rare Disease Day®, the Living Rare, Living Stronger® Patient and Family Forum, Rare Impact Awards®, and the Breakthrough Summit®. The generosity of our sponsors supports direct program costs and allows for patients and families to participate. Benefits vary by event and sponsorship level, please inquire for more information.
Your tax-deductible donations are advancing NORD’s programs, driving research, providing patient assistance, expanding education, and more. Every vital dollar is supporting the rare disease community and transforming lives.