Why Attend the NORD Breakthrough Summit®?

Join thought-leaders in discussing solutions to the most pressing issues facing the rare disease community, such as:

  • The Sustainability of Rare Disease Drug Development
  • Impact of the Inflation Reduction Act
  • Gene-Editing
  • Artificial Intelligence (AI) and Digital Health
  • Moving DEI from Good Intentions into Effective Action


The NORD Rare Diseases and Orphan Products Breakthrough Summit® offers an unparalleled opportunity to discuss complex, multi-faceted topics with all rare disease stakeholders– medical and academic experts, regulators and policymakers, innovators, patients, caregivers, and industry leaders.

Relevant and Dynamic Agenda

Sessions offering real-world, actionable information on critical topics such as:

  • Accelerated Approval
  • Pediatric Orphan Drug Development
  • Non-traditional Clinical Trials
  • Orphan Product Investment
  • Drug Repurposing
  • Mental Health and Rare Diseases

Network with Influencers and Rare Disease Community Stakeholders

Forge meaningful connections and collaborate with influential stakeholders across the rare disease community.

  • Take advantage of 1:1 networking meetings — Meetings can be scheduled through the event App. Details will be shared via email when the app opens ahead of the event.
  • Roundtable discussion groups
  • Join fellow attendees at the Welcome Reception 
  • Engage with others during the Poster Hall and Exhibit Hall Reception 
  • Connect face-to-face and build relationships with 60+ sponsors and exhibitors

Opportunities to Learn About Research and Public Health Projects

View 80+ posters from fellow academics, researchers, industry, government agencies, healthcare professionals, patient organizations, and students. The top five selected poster abstracts will be presented on the main stage during lightning round presentations.

Who Attends?

The NORD Breakthrough Summit audience encompasses a wide range of key stakeholders involved in rare disease.

Join over 900 rare disease advocates, experts, and stakeholders from around the world to tackle the most pressing issues facing the rare disease community.