NORD Rare Summit 2021

Virtual | October 18-19, 2021

Each year, the NORD Summit, one of the largest multi-stakeholder events in rare disease, brings together participants spanning the rare community, including rare disease experts and leaders from patient advocacy groups, government, industry, and academia to discuss the most current and critical topics related to rare diseases and orphan products.

What people are saying

“What an incredible lineup of speakers. Thank you for the well-organized machinery that allowed us opportunities to arrange meetings. Thank you for the opportunity to present on the vitally important topic of transition of care.”

Director of Development and Strategic Partnerships, The Myositis Association

“NEMSN’s Board thanks you very kindly for your scholarship to our organization to attend the 2020 Rare Summit. I was able to watch a little in person and then I was able to access NORD’s session files. NEMSN’s Board had picked out six of them as particularly relevant to us. We send our appreciation!”

Lois Vierk, President, National Eosinophilia Myalgia Syndrome Network

“It was a fantastic conference and well organized; I have only heard positive comments! People loved the speakers, the timely topics, the exhibit “hall”, and networking opportunities. The virtual approach can’t replace in-person conversations, but can reach people and enable important connections. Thank you to all the folks at NORD for your remarkable efforts to make this such a success.”

Susan Fernbach, RN, Director of Genetic Outreach, Baylor College of Medicine and member of NORD’s Summit Advisory Committee