NORD Summit

October 16-17, 2023
Washington, DC


NORD Meets the Moment: 800+ Key Rare Disease Leaders from FDA, Patient Groups, and Industry Convene for #NORDSummit

On October 17 and 18, the National Organization for Rare Disorders (NORD®) hosted the Rare Diseases and Orphan Products Breakthrough Summit. Over 830 enthusiastic attendees from across the globe convened to address and take action on the opportunities and challenges facing the rare disease community. Featuring content on the most critical rare issues – including accelerated approval, newborn screening, equitable access to care – the 2022 NORD Summit was host to a week of conversations and collaborations in the global community. Save the date for NORD Summit 2023, set for October 16-17, 2023 in Washington, DC!

Sessions now available On Demand via the Summit App. Log in using your registration credentials here.

2022 NORD Summit Sponsors





Supporters & Exhibitors

What people are saying

“What an incredible lineup of speakers. Thank you for the well-organized machinery that allowed us opportunities to arrange meetings. Thank you for the opportunity to present on the vitally important topic of transition of care.”

Director of Development and Strategic Partnerships, The Myositis Association

“NEMSN’s Board thanks you very kindly for your scholarship to our organization to attend the 2020 Rare Summit. I was able to watch a little in person and then I was able to access NORD’s session files. NEMSN’s Board had picked out six of them as particularly relevant to us. We send our appreciation!”

Lois Vierk, President, National Eosinophilia Myalgia Syndrome Network

“It was a fantastic conference and well organized; I have only heard positive comments! People loved the speakers, the timely topics, the exhibit “hall”, and networking opportunities. The virtual approach can’t replace in-person conversations, but can reach people and enable important connections. Thank you to all the folks at NORD for your remarkable efforts to make this such a success.”

Susan Fernbach, RN, Director of Genetic Outreach, Baylor College of Medicine and member of NORD’s Summit Advisory Committee

Keep up-to-date on the latest NORD Summit news