NORD Summit

October 17-18 2022
Back in person in Washington, DC

NORD Summit

Live and in-person from Marriot Marquis in Washington, DC.
Please use attendee password: NORATT22 while making your reservation.

October 17-18 2022  

This year, NORD is thrilled to welcome all community stakeholders back together in-person to Washington, DC for the 2022 Rare Diseases and Orphan Products Breakthrough Summit. Join your fellow rare disease leaders from patient advocacy groups, government, industry, and academia for exclusive access to fresh insights, compelling connections, and expert resources. Don’t miss out on #NORDSummit – registration is OPEN now!

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NORD Summit 2021 Recap


The National Organization for Rare Disorders (NORD®) hosted the virtual Rare Diseases and Orphan Products Breakthrough Summit on October 18-19, 2021 welcoming nearly 1,000 registrants from 33 countries for one of the largest and most important global events in rare disease.

Read the Recap

What people are saying


“What an incredible lineup of speakers. Thank you for the well-organized machinery that allowed us opportunities to arrange meetings. Thank you for the opportunity to present on the vitally important topic of transition of care.”

Director of Development and Strategic Partnerships, The Myositis Association

“NEMSN’s Board thanks you very kindly for your scholarship to our organization to attend the 2020 Rare Summit. I was able to watch a little in person and then I was able to access NORD’s session files. NEMSN’s Board had picked out six of them as particularly relevant to us. We send our appreciation!”

Lois Vierk, President, National Eosinophilia Myalgia Syndrome Network

“It was a fantastic conference and well organized; I have only heard positive comments! People loved the speakers, the timely topics, the exhibit “hall”, and networking opportunities. The virtual approach can’t replace in-person conversations, but can reach people and enable important connections. Thank you to all the folks at NORD for your remarkable efforts to make this such a success.”

Susan Fernbach, RN, Director of Genetic Outreach, Baylor College of Medicine and member of NORD’s Summit Advisory Committee

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