The NORD® Rare Diseases and Orphan Products Breakthrough Summit® convenes thought leaders from patient advocacy organizations, industry, academia, research and government to discuss the most timely and critical topics facing the rare disease community.
With a theme of “Equitable Access to Innovation”, the 2024 NORD Summit will feature thought-provoking discussions and actionable strategies on the latest advances in clinical trials, gene therapy, medical devices, AI and patient-focused drug development with an underlying focus on inclusion and equal access for all. In addition, there will be ample opportunities for networking and the opportunity to learn about the latest rare disease research in our Poster Hall.
Check back often for updates!
February 12, 2024 – Speaker and Abstract Submissions Open
March 8, 2024 – Speaker Submission Deadline
June 12, 2024 – Abstract Submission Deadline
June 24, 2024 – Registration Opens
July 23, 2024 – Abstract Decision Notifications sent by NORD
September 9, 2024 – Early Bird Registration Closes
September 20, 2024 – Hotel Reservations Deadline
October 20, 2024 – NORD Rare Diseases & Orphan Products Breakthrough Summit Welcome Reception
October 21 -22, 2024 – NORD Rare Diseases & Orphan Products Breakthrough Summit
On the first day of the NORD Summit, we announced the launch of a new education series in partnership with the FDA and C-Path titled, “Rare Disease Drug Development: What Patients and Advocates Need to Know,” designed to help patients and advocacy groups understand their essential role in the drug development process so we can produce more and better treatments for rare diseases.
Each course in the series is available in both English and Spanish in a mix of formats to accommodate multiple learning styles, including animated videos, expert interviews, infographics, fact sheets, checklists, and interactive quizzes. The first few courses are available now, and subsequent courses will be released later this year and throughout 2024.
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Corporate sponsorship opportunities are available for Rare Disease Day®, the Living Rare, Living Stronger® Patient and Family Forum, Rare Impact Awards®, and the Breakthrough Summit®. The generosity of our sponsors supports direct program costs and allows for patients and families to participate. Benefits vary by event and sponsorship level, please inquire for more information.
Your tax-deductible donations are advancing NORD’s programs, driving research, providing patient assistance, expanding education, and more. Every vital dollar is supporting the rare disease community and transforming lives.