Networking Lunch or Lunch & Learn Discussion Groups

View Lunch & Learn Sessions

Lunch & Learn Topics: (Discussion groups are 1:00-2:00pm)

*session offered on both days, please register for one

Careers in Rare
With so many advances in rare disease treatment and care, the need for trained professionals from various backgrounds is greater than ever. Learn about the various careers in rare and their impact on the rare disease community.

Clinical Trial Access in Oncology
Access to clinical trials across the rare cancer spectrum will be discussed.

How to Launch a Rare Disease Advisory Council (RDAC) in Your State *
RDACs give the rare community a stronger voice in state government. Learn whether one exists in your state and how you can get involved.

Hybrid Events and Fundraising
Patient advocacy groups can learn tips and tricks to leverage hybrid events and fundraising efforts

Launching a Patient Registry *
Through examples of the IAMRARE Registry Program, learn how to inform and shape medical research and translational science for rare diseases by launching high-quality, customized registries

Patient Input on Clinical Trial Design *
Join this facilitated discussion on how patients and industry partners can work together to keep patient needs top of mind during clinical trial design.

Patient Organizations and DEI
Continue the discussion on how patient organizations are advancing their DEI goals and expanding their services.

Rare Disease Cures Accelerator – Data and Analytics Platform (RDCA-DAP)
Discuss the role of data in rare disease research and how this platform facilitates data-analysis and data-sharing to accelerate development of treatments for rare diseases

Reimagining the Future of Rare Disease Diagnosis
Diagnosis remains one of the key challenges for the rare community but advances in testing and collaborative efforts to address the challenges offer hope for the future.

Respecting Our Roles: Patient Organizations & Industry
Explore how patient organizations and industry partners can successfully work together to achieve common goals.