NORD Rare Diseases & Orphan Products Breakthrough Summit

NORD Leads the Way: Influential Rare Disease Stakeholders from FDA, Patient Organizations, and Industry Will Gather for #NORDSummit 2023

Join the National Organization for Rare Disorders (NORD®) October 15-17, 2023 for the Rare Diseases and Orphan Products Breakthrough Summit. This exciting event brings together over 900 rare disease advocates, experts, and stakeholders from around the world to tackle the most pressing issues facing the rare disease community. We will focus on the most critical topics to the rare disease community, including the impact of the Inflation Reduction Act, gene editing, equitable access to care, and more. The 2023 NORD Breakthrough Summit promises a full program of productive discussions and collaborative solutions.

2022 NORD Breakthrough Summit Recap

NORD Meets the Moment: 800+ Key Rare Disease Leaders from FDA, Patient Groups, and Industry Convene for #NORDSummit

On October 17 and 18, the National Organization for Rare Disorders (NORD®) hosted the Rare Diseases and Orphan Products Breakthrough Summit. Over 830 enthusiastic attendees from across the globe convened to address and take action on the opportunities and challenges facing the rare disease community. Featuring content on the most critical rare issues – including accelerated approval, newborn screening, equitable access to care – the 2022 NORD Summit was host to a week of conversations and collaborations in the global community.