Jay Bhattacharya, MD, PhD

Director

National Institutes of Health (NIH)

Elizabeth Ames, MD, PhD

Clinical Associate Professor of Pediatrics

University of Michigan Health, a NORD Rare Disease Center of Excellence

Lisa Butler

President & CEO

GBS | CIDP International Foundation

Daniel Caños, PhD

Director, Office of Clinical Evidence and Analysis, OPEQ

CDRH, FDA

Aneesh Deoras, MSE

Acting Division Director for Digital Health Technology Assessment

CDRH, FDA

Kyle Diamantas, JD

Acting Commissioner of Food and Drugs

U.S. Food and Drug Administration (FDA)

Sarah Dunsmore, PhD

Program Director

NCATS, NIH

Stephanie E. Haridopolos, MD, DABFM

Director of National Health Communications

Office of the Surgeon General and Principal Deputy Assistant Secretary for Health Policy

Renee Gala, MBA

President and CEO

Jazz Pharmaceuticals

Pamela Gavin, MBA

Chief Executive Officer

NORD

Hilary Gee Goeckner, MSW

Director, State & Local Campaigns - Access to Care

American Cancer Society Cancer Action Network

Steven Gray, PhD

Professor

UT Southwestern Medical Center, a NORD Rare Disease Center of Excellence

Ada Hamosh, MD, MPH

Dr. Frank V. Sutland Professor of Pediatric Genetics, Department of Genetic Medicine and Pediatrics

Johns Hopkins Medicine, a NORD Rare Disease Center of Excellence

Alexander Hardy

President and CEO

BioMarin

Tracy Hart

CEO

Osteogenesis Imperfecta Foundation

Elizabeth Hart, MD

Associate Director for Rare Diseases

CDER, FDA

Reena Kartha, MS, PhD

Associate Professor & Associate Director

Center for Orphan Drug Research, Experimental and Clinical Pharmacology, University of Minnesota

Beth Kozel, MD, PhD

Chief of the Division of Genetics and Genomic Medicine and the Director of Constitutional Genomics Translational Research

Nationwide Children's Hospital, a NORD Rare Disease Center of Excellence

Martin Mackay, PhD

Co-Founder & Chair

RallyBio

Marybeth McAfee, MA, GC

Vice President, Community and Medical Affairs

NORD

Karim Mikhail, B.Pharm, MSc

Director

CBER, FDA

John A. Morren, MD, MEd, FAAN, FAANEM

Director

Cleveland Clinic Lerner College of Medicine of Case Western Reserve University

Sean Nolan

Chief Executive Officer

Taysha Gene Therapies

Jim Palma

CEO

TargetCancer Foundation

Becky Quick

Co-anchor and Host

CNBC “Squawk Box” and CNBC Cures

Tarek Rabah, MBA

President and Chief Executive Officer

Otsuka North America Pharmaceutical

Debra Regier, MD, PhD

Director

Ward Winslett Center for Rare Diseases, Atrium Health Levine Children's Hospital, a NORD Rare Disease Center of Excellence

Lindsay Rosen

Vice President, Strategy

Medlive

Camille Samuels

Board Director and Venture Investor

David Scheer

President

Scheer & Company, Inc.

Brittany Schuck, PhD

Deputy Office Director, Office of In Vitro Diagnostics

CDRH, FDA

Ben Shaberman, MS, MA

Science Communications Advisor

Hope in Focus

Natasha Shur, MD

Division Chief, Genetics and Metabolism, Medical Geneticist

Children’s National Hospital

Tracey Sikora

Vice President of Research and Clinical Programs

NORD

The Honorable Troy Singleton, BS

New Jersey State Senator

New Jersey Legislature

Stephen Squinto, PhD

Chief Investment Officer

J.P. Morgan Life Science Private Capital

Uthra Sundaram

Senior Vice President, Business Unit Head

USBU Foundational Therapeutics Platform (FTP); Takeda Pharmaceuticals U.S.A., Inc.

V. Reid Sutton, MD

Professor of Molecular & Human Genetics

Baylor College of Medicine & Texas Children’s Hospital, a NORD Rare Disease Center of Excellence

Michelle E. Tarver, MD, PhD

Director

Center for Devices and Radiological Health (CDRH), FDA

Nicholas Vita

Co-Founder, CEO, Member of the Board

Apriligen, Inc.

Janet Woodcock, MD

Former Director

Center for Drug Evaluation and Research, FDA

Byeong Yoon

Vice President of Medical, Rare Disease

Amgen